{"id":1660,"date":"2026-02-06T13:05:03","date_gmt":"2026-02-06T12:05:03","guid":{"rendered":"https:\/\/velkommentilulla.dk\/?page_id=1660"},"modified":"2026-02-07T16:05:02","modified_gmt":"2026-02-07T15:05:02","slug":"min-historie-del-4","status":"publish","type":"page","link":"https:\/\/velkommentilulla.dk\/?page_id=1660","title":{"rendered":"Min historie \u2013 Del 4"},"content":{"rendered":"\n<div class=\"wp-block-stackable-heading stk-block-heading stk-block-heading--v2 stk-block stk-a1c5041\" id=\"nar-sygdommen-ikke-forsvinder-men-livet-fortsaetter\" data-block-id=\"a1c5041\"><h3 class=\"stk-block-heading__text\">N\u00e5r sygdommen ikke forsvinder, men livet forts\u00e6tter<\/h3><\/div>\n\n\n\n<div class=\"wp-block-stackable-heading stk-block-heading stk-block-heading--v2 stk-block stk-291e6d7\" id=\"at-leve-med-konsekvenserne-ikke-kun-sygdommen\" data-block-id=\"291e6d7\"><h5 class=\"stk-block-heading__text\">At leve med konsekvenserne \u2013 ikke kun sygdommen<\/h5><\/div>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-7439a23\" data-block-id=\"7439a23\"><p class=\"stk-block-text__text\">Crohns sygdom forsvandt ikke.<br>Fistlerne forsvandt ikke bare.<br>Og en stomi er ikke en lykkelig slutning.<\/p><\/div>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-1718034\" data-block-id=\"1718034\"><p class=\"stk-block-text__text\">Men noget \u00e6ndrede sig.<\/p><\/div>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-adc91c6\" data-block-id=\"adc91c6\"><p class=\"stk-block-text__text\">Jeg begyndte langsomt at l\u00e6re, at livet med kronisk sygdom ikke kun handler om diagnoser, operationer og medicin \u2013<br>men om <strong>konsekvenserne<\/strong>.<\/p><\/div>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-c4add0d\" data-block-id=\"c4add0d\"><p class=\"stk-block-text__text\">Tr\u00e6thed, der ikke kan soves v\u00e6k.<br>En krop, der siger fra uden varsel.<br>Et nervesystem, der altid er lidt p\u00e5 vagt.<\/p><\/div>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-fb21c7a\" data-block-id=\"fb21c7a\"><p class=\"stk-block-text__text\">Og en hverdag, der hele tiden skal justeres.<\/p><\/div>\n\n\n\n<div class=\"wp-block-stackable-heading stk-block-heading stk-block-heading--v2 stk-block stk-88f519d\" id=\"at-finde-styrke-uden-at-skulle-vaere-staerk\" data-block-id=\"88f519d\"><h5 class=\"stk-block-heading__text\">At finde styrke uden at skulle v\u00e6re st\u00e6rk<\/h5><\/div>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-7e74c49\" data-block-id=\"7e74c49\"><p class=\"stk-block-text__text\">Der findes et pres p\u00e5 mennesker med kronisk sygdom:<br>Man skal v\u00e6re sej.<br>Positiv.<br>Taknemmelig.<\/p><\/div>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-01da673\" data-block-id=\"01da673\"><p class=\"stk-block-text__text\">Men sandheden er, at styrke ikke altid ser p\u00e6n ud.<\/p><\/div>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-3931b06\" data-block-id=\"3931b06\"><p class=\"stk-block-text__text\">Nogle dage er styrke:<\/p><\/div>\n\n\n\n<ul class=\"wp-block-list\">\n<li>at blive i sengen<\/li>\n\n\n\n<li>at aflyse<\/li>\n\n\n\n<li>at sige \u201cjeg kan ikke i dag\u201d<\/li>\n<\/ul>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-fe54c31\" data-block-id=\"fe54c31\"><p class=\"stk-block-text__text\">Jeg l\u00e6rte, at det ikke er et nederlag.<br>Det er overlevelse.<\/p><\/div>\n\n\n\n<div class=\"wp-block-stackable-heading stk-block-heading stk-block-heading--v2 stk-block stk-3ef4f29\" id=\"relationer-der-aendrer-sig\" data-block-id=\"3ef4f29\"><h5 class=\"stk-block-heading__text\">Relationer, der \u00e6ndrer sig<\/h5><\/div>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-ec13934\" data-block-id=\"ec13934\"><p class=\"stk-block-text__text\">Sygdom sorterer i mennesker.<\/p><\/div>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-cdf70d1\" data-block-id=\"cdf70d1\"><p class=\"stk-block-text__text\">Nogle forsvinder stille.<br>Andre bliver \u2013 ogs\u00e5 n\u00e5r det er besv\u00e6rligt.<\/p><\/div>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-b8be817\" data-block-id=\"b8be817\"><p class=\"stk-block-text__text\">M blev.<br>Familien blev.<br>Og enkelte mennesker viste sig at kunne rumme b\u00e5de sygdommen og mig.<\/p><\/div>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-55da0fa\" data-block-id=\"55da0fa\"><p class=\"stk-block-text__text\">Det l\u00e6rte mig noget vigtigt:<br>Jeg beh\u00f8ver ikke g\u00f8re mig mindre for at passe ind.<\/p><\/div>\n\n\n\n<div class=\"wp-block-stackable-heading stk-block-heading stk-block-heading--v2 stk-block stk-e513dc4\" id=\"fra-patient-til-stemme\" data-block-id=\"e513dc4\"><h2 class=\"stk-block-heading__text\">Fra patient til stemme<\/h2><\/div>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-9c75779\" data-block-id=\"9c75779\"><p class=\"stk-block-text__text\">P\u00e5 et tidspunkt kunne jeg m\u00e6rke, at alt det, jeg havde oplevet, ikke bare m\u00e5tte blive inde i mig.<br>Jeg havde set:<\/p><\/div>\n\n\n\n<ul class=\"wp-block-list\">\n<li>systemfejl<\/li>\n\n\n\n<li>manglende viden<\/li>\n\n\n\n<li>patienter, der ikke blev h\u00f8rt<\/li>\n\n\n\n<li>b\u00f8rn og unge, der stod alene med alt for meget ansvar<\/li>\n<\/ul>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-18a8575\" data-block-id=\"18a8575\"><p class=\"stk-block-text__text\">Og jeg vidste \u00e9n ting:<br>Hvis ikke vi, der lever med det, fort\u00e6ller hvordan det virkelig er \u2013<br>s\u00e5 bliver det ved med at v\u00e6re usynligt.<\/p><\/div>\n\n\n\n<div class=\"wp-block-stackable-heading stk-block-heading stk-block-heading--v2 stk-block stk-3d66a89\" id=\"ccf-og-kampen-for-forandring\" data-block-id=\"3d66a89\"><h5 class=\"stk-block-heading__text\">CCF og kampen for forandring<\/h5><\/div>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-b815c4d\" data-block-id=\"b815c4d\"><p class=\"stk-block-text__text\">Mit engagement i CCF blev et vendepunkt.<\/p><\/div>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-d447e0d\" data-block-id=\"d447e0d\"><p class=\"stk-block-text__text\">Her m\u00f8dte jeg andre, der k\u00e6mpede \u2013 ikke kun for sig selv, men for f\u00e6llesskabet.<br>For bedre vilk\u00e5r.<br>For mere viden.<br>For mere menneskelighed.<\/p><\/div>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-6a0cf7d\" data-block-id=\"6a0cf7d\"><p class=\"stk-block-text__text\">Det handlede ikke om at v\u00e6re den st\u00e6rkeste.<br>Men om at st\u00e5 sammen.<\/p><\/div>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-471cd35\" data-block-id=\"471cd35\"><p class=\"stk-block-text__text\">Hvorfor Velkommen til Ulla findes<\/p><\/div>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-5e36148\" data-block-id=\"5e36148\"><p class=\"stk-block-text__text\">Velkommen til Ulla er ikke skabt, fordi jeg har alle svar.<\/p><\/div>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-bd50dcb\" data-block-id=\"bd50dcb\"><p class=\"stk-block-text__text\">Den findes, fordi jeg ved, hvordan det f\u00f8les:<\/p><\/div>\n\n\n\n<ul class=\"wp-block-list\">\n<li>at v\u00e6re bange<\/li>\n\n\n\n<li>at v\u00e6re alene<\/li>\n\n\n\n<li>at blive misforst\u00e5et<\/li>\n\n\n\n<li>at mangle nogen, der taler \u00e6rligt<\/li>\n<\/ul>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-798ded9\" data-block-id=\"798ded9\"><p class=\"stk-block-text__text\">Her er plads til det, der ikke passer ind i glansbilledet.<br>Her er plads til b\u00e5de h\u00e5b og h\u00e5bl\u00f8shed.<br>Og her er plads til dig \u2013 pr\u00e6cis som du er.<\/p><\/div>\n\n\n\n<div class=\"wp-block-stackable-heading stk-block-heading stk-block-heading--v2 stk-block stk-d151aa9\" id=\"\ud83c\udf31-en-anden-slags-hab\" data-block-id=\"d151aa9\"><h5 class=\"stk-block-heading__text\">\ud83c\udf31 En anden slags h\u00e5b<\/h5><\/div>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-5fe9013\" data-block-id=\"5fe9013\"><p class=\"stk-block-text__text\">Mit h\u00e5b i dag er ikke et liv uden Crohns sygdom.<\/p><\/div>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-95057d6\" data-block-id=\"95057d6\"><p class=\"stk-block-text__text\"><br>Mit h\u00e5b er:<\/p><\/div>\n\n\n\n<ul class=\"wp-block-list\">\n<li>at f\u00e6rre f\u00f8ler sig alene<\/li>\n\n\n\n<li>at flere bliver taget alvorligt<\/li>\n\n\n\n<li>at systemet lytter tidligere<\/li>\n\n\n\n<li>og at historier som min ikke bliver tiet ihjel<\/li>\n<\/ul>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-5deef31\" data-block-id=\"5deef31\"><p class=\"stk-block-text__text\">Hvis min historie kan g\u00f8re bare \u00e9n ting lettere for \u00e9n anden \u2013<br>s\u00e5 giver det hele mening.<\/p><\/div>\n\n\n\n<div class=\"wp-block-stackable-button-group stk-block-button-group stk-block stk-bc4d014\" data-block-id=\"bc4d014\"><div class=\"stk-row stk-inner-blocks stk-block-content stk-button-group\">\n<div class=\"wp-block-stackable-button stk-block-button stk-block stk-9787170\" data-block-id=\"9787170\"><a class=\"stk-link stk-button stk--hover-effect-darken\" href=\"https:\/\/velkommentilulla.dk\/\"><span class=\"stk-button__inner-text\">L\u00e6s mere<\/span><\/a><\/div>\n<\/div><\/div>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-c861f9e\" data-block-id=\"c861f9e\"><p class=\"stk-block-text__text\"><\/p><\/div>\n","protected":false},"excerpt":{"rendered":"<p>N\u00e5r sygdommen ikke forsvinder, men livet forts\u00e6tter At leve med konsekvenserne \u2013 ikke kun sygdommen Crohns sygdom forsvandt ikke.Fistlerne forsvandt ikke bare.Og en stomi er ikke en lykkelig slutning. Men noget \u00e6ndrede sig. Jeg begyndte langsomt at l\u00e6re, at livet med kronisk sygdom ikke kun handler om diagnoser, operationer og medicin \u2013men om konsekvenserne. Tr\u00e6thed, [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-1660","page","type-page","status-publish","hentry"],"blocksy_meta":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Min historie \u2013 Del 4 - Velkommen til Ulla<\/title>\n<meta name=\"description\" content=\"MIn historie del 4- Vi er ved at n\u00e5 slutningen p\u00e5 min kamp med fistler men bestemt ikke slutningen p\u00e5 livet. det er f\u00f8rst nu det starter igen\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/velkommentilulla.dk\/?page_id=1660\" \/>\n<meta property=\"og:locale\" content=\"da_DK\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Min historie \u2013 Del 4 - 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