{"id":1510,"date":"2026-02-03T19:33:24","date_gmt":"2026-02-03T18:33:24","guid":{"rendered":"https:\/\/velkommentilulla.dk\/?page_id=1510"},"modified":"2026-02-07T22:35:34","modified_gmt":"2026-02-07T21:35:34","slug":"min-stemme-i-verden","status":"publish","type":"page","link":"https:\/\/velkommentilulla.dk\/?page_id=1510","title":{"rendered":"&#8220;Min stemme i verden&#8221;"},"content":{"rendered":"\n<div class=\"wp-block-stackable-image stk-block-image stk-block stk-5a3a06e\" data-block-id=\"5a3a06e\"><style>.stk-5a3a06e .stk-img-wrapper{aspect-ratio:3\/1 !important;width:1024px !important;height:auto !important;}.stk-5a3a06e .stk-img-wrapper img{object-position:52% 68% !important;}.stk-5a3a06e .stk-img-wrapper::after{background-color:#f4efea !important;}@media screen and (max-width:999px){.stk-5a3a06e .stk-img-wrapper{height:auto !important;}}@media screen and (max-width:689px){.stk-5a3a06e .stk-img-wrapper{height:auto !important;}}<\/style><figure><span class=\"stk-img-wrapper stk-image--shape-stretch\"><img loading=\"lazy\" decoding=\"async\" class=\"stk-img wp-image-1511\" src=\"http:\/\/velkommentilulla.dk\/wp-content\/uploads\/2026\/02\/1770140142702.png\" width=\"1024\" height=\"1024\" alt=\"Min stemme i verden - livet med crohn\" srcset=\"https:\/\/velkommentilulla.dk\/wp-content\/uploads\/2026\/02\/1770140142702.png 1024w, https:\/\/velkommentilulla.dk\/wp-content\/uploads\/2026\/02\/1770140142702-300x300.png 300w, https:\/\/velkommentilulla.dk\/wp-content\/uploads\/2026\/02\/1770140142702-150x150.png 150w, https:\/\/velkommentilulla.dk\/wp-content\/uploads\/2026\/02\/1770140142702-768x768.png 768w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/span><\/figure><\/div>\n\n\n\n<h1 class=\"wp-block-heading\">Min stemme i verden<\/h1>\n\n\n\n<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\">\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-983d334\" data-block-id=\"983d334\"><p class=\"stk-block-text__text\">Jeg deler min erfaring, n\u00e5r den kan g\u00f8re en forskel.Her kan du l\u00e6se om de steder, hvor min stemme har v\u00e6ret brugt \u2013i forskning, medier og formidling.<\/p><\/div>\n<\/blockquote>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 class=\"wp-block-heading\">Forskning &amp; faglige bidrag<\/h2>\n\n\n\n<div class=\"wp-block-stackable-heading stk-block-heading stk-block-heading--v2 stk-block stk-ce7547d\" id=\"the-lancet-international-medicinsk-artikel\" data-block-id=\"ce7547d\"><h3 class=\"stk-block-heading__text\">The Lancet \u2013 international medicinsk artikel<\/h3><\/div>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-aff4ff3\" data-block-id=\"aff4ff3\"><p class=\"stk-block-text__text\">Medforfatter p\u00e5 artikel i The Lancet med fokus p\u00e5 patientperspektiver og kliniske analyser, som bringer fokus p\u00e5 b\u00e5de sygdomsbyrde og det liv, der leves uden for laboratoriet.<\/p><\/div>\n\n\n\n<div class=\"wp-block-stackable-columns stk-block-columns stk-block stk-c934842\" data-block-id=\"c934842\"><div class=\"stk-row stk-inner-blocks stk-block-content stk-content-align stk-c934842-column\">\n<div class=\"wp-block-stackable-column stk-block-column stk-column stk-block stk-cc9af2e\" data-v=\"4\" data-block-id=\"cc9af2e\"><div class=\"stk-column-wrapper stk-block-column__content stk-container stk-cc9af2e-container stk--no-background stk--no-padding\"><div class=\"stk-block-content stk-inner-blocks stk-cc9af2e-inner-blocks\">\n<div class=\"wp-block-stackable-columns stk-block-columns stk-block stk-9f510b6\" data-block-id=\"9f510b6\"><div class=\"stk-row stk-inner-blocks stk-block-content stk-content-align stk-9f510b6-column\">\n<div class=\"wp-block-stackable-column stk-block-column stk-column stk-block stk-1d5833c\" data-v=\"4\" data-block-id=\"1d5833c\"><style>@media screen and (min-width:690px){.stk-1d5833c {flex:var(--stk-flex-grow, 1) 1 25% !important;}}<\/style><div class=\"stk-column-wrapper stk-block-column__content stk-container stk-1d5833c-container stk--no-background stk--no-padding\"><div class=\"stk-block-content stk-inner-blocks stk-1d5833c-inner-blocks\">\n<div class=\"wp-block-stackable-button-group stk-block-button-group stk-block stk-8c78f8e\" data-block-id=\"8c78f8e\"><div class=\"stk-row stk-inner-blocks stk-block-content stk-button-group\">\n<div class=\"wp-block-stackable-button stk-block-button stk-block stk-6496014\" data-block-id=\"6496014\"><style>.stk-6496014 .stk-button{border-top-left-radius:var(--stk--preset--border-radius--full, 9999px) !important;border-top-right-radius:var(--stk--preset--border-radius--full, 9999px) !important;border-bottom-right-radius:var(--stk--preset--border-radius--full, 9999px) !important;border-bottom-left-radius:var(--stk--preset--border-radius--full, 9999px) !important;}.stk-6496014 .stk-button:before{box-shadow:0px 10px 60px #0000001a !important;border-style:solid !important;border-top-width:2px !important;border-right-width:2px !important;border-bottom-width:2px !important;border-left-width:2px !important;}<\/style><a class=\"stk-link stk-button stk--hover-effect-darken\" href=\"https:\/\/www.thelancet.com\/journals\/langas\/article\/PIIS2468-1253(24)00159-6\/abstract\"><span class=\"stk-button__inner-text\">L\u00e6s artiklen her<\/span><\/a><\/div>\n<\/div><\/div>\n<\/div><\/div><\/div>\n\n\n\n<div class=\"wp-block-stackable-column stk-block-column stk-column stk-block stk-c61ed6e\" data-v=\"4\" data-block-id=\"c61ed6e\"><style>@media screen and (min-width:690px){.stk-c61ed6e {flex:var(--stk-flex-grow, 1) 1 25% !important;}}<\/style><div class=\"stk-column-wrapper stk-block-column__content stk-container stk-c61ed6e-container stk--no-background stk--no-padding\"><div class=\"stk-block-content stk-inner-blocks stk-c61ed6e-inner-blocks\"><\/div><\/div><\/div>\n\n\n\n<div class=\"wp-block-stackable-column stk-block-column stk-column stk-block stk-992f5df\" data-v=\"4\" data-block-id=\"992f5df\"><style>@media screen and (min-width:690px){.stk-992f5df {flex:var(--stk-flex-grow, 1) 1 25% !important;}}<\/style><div class=\"stk-column-wrapper stk-block-column__content stk-container stk-992f5df-container stk--no-background stk--no-padding\"><div class=\"stk-block-content stk-inner-blocks stk-992f5df-inner-blocks\"><\/div><\/div><\/div>\n\n\n\n<div class=\"wp-block-stackable-column stk-block-column stk-column stk-block stk-14d988b\" data-v=\"4\" data-block-id=\"14d988b\"><style>@media screen and (min-width:690px){.stk-14d988b {flex:var(--stk-flex-grow, 1) 1 25% !important;}}<\/style><div class=\"stk-column-wrapper stk-block-column__content stk-container stk-14d988b-container stk--no-background stk--no-padding\"><div class=\"stk-block-content stk-inner-blocks stk-14d988b-inner-blocks\"><\/div><\/div><\/div>\n<\/div><\/div>\n<\/div><\/div><\/div>\n<\/div><\/div>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>ECCO \u2013 guidelines og konsensus om kost &amp; ern\u00e6ring<\/strong><\/h3>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-fcad38d\" data-block-id=\"fcad38d\"><p class=\"stk-block-text__text\">Kort om, at patientperspektivet og hverdagslivet ogs\u00e5 h\u00f8rer hjemme i faglige anbefalinger om kost og ern\u00e6ring ved IBD.<\/p><\/div>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-0e5549b\" data-block-id=\"0e5549b\"><p class=\"stk-block-text__text\">ECCO\u2019s guideline-oversigt<\/p><\/div>\n\n\n\n<div class=\"wp-block-stackable-button-group stk-block-button-group stk-block stk-7b2c6fe\" data-block-id=\"7b2c6fe\"><style>.stk-7b2c6fe {margin-bottom:0px !important;}<\/style><div class=\"stk-row stk-inner-blocks stk-block-content stk-button-group\">\n<div class=\"wp-block-stackable-button stk-block-button stk-block stk-2352192\" data-block-id=\"2352192\"><style>.stk-2352192 .stk-button{border-top-left-radius:var(--stk--preset--border-radius--full, 9999px) !important;border-top-right-radius:var(--stk--preset--border-radius--full, 9999px) !important;border-bottom-right-radius:var(--stk--preset--border-radius--full, 9999px) !important;border-bottom-left-radius:var(--stk--preset--border-radius--full, 9999px) !important;}.stk-2352192 .stk-button:before{border-style:solid !important;border-top-width:2px !important;border-right-width:2px !important;border-bottom-width:2px !important;border-left-width:2px !important;}<\/style><a class=\"stk-link stk-button stk--hover-effect-darken\" href=\"https:\/\/academic.oup.com\/ecco-jcc\/article\/19\/9\/jjaf122\/8198055?login=true#539750138\"><span class=\"stk-button__inner-text\">L\u00e6s artiklen her<\/span><\/a><\/div>\n<\/div><\/div>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>RKKP \/ SundK \u2013 kvalitetsdata i l\u00e6gmandssprog<\/strong><\/h3>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-b983e20\" data-block-id=\"b983e20\"><p class=\"stk-block-text__text\">Jeg bidrager i regi af RKKP \/ Sundhedsv\u00e6senets Kvalitetsinstitut til arbejdet med \u00e5rsrapporter, hvor faglige resultater bliver oversat til et sprog, som patienter og p\u00e5r\u00f8rende kan forst\u00e5.<\/p><\/div>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Medvirkende til genneml\u00e6sning og formidling af <strong><a href=\"https:\/\/www.sundk.dk\/media\/am5nfksd\/akdb_aarsrapport_2024_offentligversion.pdf\">\u00c5rsrapport 2024<\/a><\/strong><\/li>\n\n\n\n<li>Fokus p\u00e5 klarhed, gennemsigtighed og patientforst\u00e5else<\/li>\n\n\n\n<li>Arbejder ogs\u00e5 med <strong>\u00e5rsrapport 2025<\/strong> (under udarbejdelse)<\/li>\n<\/ul>\n\n\n\n<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\">\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-4a206aa\" data-block-id=\"4a206aa\"><p class=\"stk-block-text__text\">\u201cViden g\u00f8r f\u00f8rst en forskel, n\u00e5r den kan forst\u00e5s.\u201d<\/p><\/div>\n<\/blockquote>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<div class=\"wp-block-stackable-heading stk-block-heading stk-block-heading--v2 stk-block stk-6549e00\" id=\"patientrepraesentation-amp-systemudvikling\" data-block-id=\"6549e00\"><h2 class=\"stk-block-heading__text\">Patientrepr\u00e6sentation &amp; systemudvikling<\/h2><\/div>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-04f8096\" data-block-id=\"04f8096\"><p class=\"stk-block-text__text\">RKKP \/ SundK<br>\u2013 \u00e5rsrapporter 2024 + arbejde med 2025<\/p><\/div>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-fd0ba73\" data-block-id=\"fd0ba73\"><p class=\"stk-block-text__text\">Mediciner\u00e5det<br>\u2013 deltagelse og patientperspektiv<\/p><\/div>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-495a4ef\" data-block-id=\"495a4ef\"><p class=\"stk-block-text__text\">V\u00e6lg Klogt \u2013 workshop\u2013 <br><a href=\"https:\/\/vaelgklogt.dk\/arrangementer\/workshop-ind-og-ud-af-hospitalet-samme-dag\">Ind og ud af hospitalet samme dag<\/a><\/p><\/div>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-ccab2bd\" data-block-id=\"ccab2bd\"><p class=\"stk-block-text__text\">Patient- og P\u00e5r\u00f8render\u00e5d, Esbjerg &amp; Grindsted Sygehus<br>\u2013 <a href=\"https:\/\/esbjerggrindstedsygehus.dk\/om-esbjerg-og-grindsted-sygehus\/nyheder\/2025\/nye-bokse-gor-det-fleksibelt-og-nemt-at-hente-medicin\">medicinbokse-artikel<\/a><\/p><\/div>\n\n\n\n<h2 class=\"wp-block-heading\">Medier &amp; omtale<\/h2>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>Facebook \u2013 patientfort\u00e6lling delt af organisation\/medie<\/strong><\/h3>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-5931032\" data-block-id=\"5931032\"><p class=\"stk-block-text__text\">Opslag med min historie delt p\u00e5 Facebook i en sundhedsfaglig sammenh\u00e6ng, hvor patientperspektivet bringes i spil og n\u00e5r bredt ud.<\/p><\/div>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-534873f\" data-block-id=\"534873f\"><p class=\"stk-block-text__text\">Knap\/link: Se opslaget p\u00e5 Facebook<\/p><\/div>\n\n\n\n<div class=\"wp-block-stackable-button-group stk-block-button-group stk-block stk-57f2bef\" data-block-id=\"57f2bef\"><div class=\"stk-row stk-inner-blocks stk-block-content stk-button-group\">\n<div class=\"wp-block-stackable-button stk-block-button stk-block stk-d8accac\" data-block-id=\"d8accac\"><style>.stk-d8accac .stk-button{border-top-left-radius:var(--stk--preset--border-radius--full, 9999px) !important;border-top-right-radius:var(--stk--preset--border-radius--full, 9999px) !important;border-bottom-right-radius:var(--stk--preset--border-radius--full, 9999px) !important;border-bottom-left-radius:var(--stk--preset--border-radius--full, 9999px) !important;}.stk-d8accac .stk-button:before{border-style:solid !important;border-top-width:2px !important;border-right-width:2px !important;border-bottom-width:2px !important;border-left-width:2px !important;}<\/style><a class=\"stk-link stk-button stk--hover-effect-darken\" href=\"https:\/\/www.facebook.com\/share\/p\/17ptt2dpxW\/\"><span class=\"stk-button__inner-text\">L\u00e6s mere her<\/span><\/a><\/div>\n<\/div><\/div>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>DR.dk \u2013 beredskab og kronisk sygdom<\/strong><\/h3>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-dbfe8f0\" data-block-id=\"dbfe8f0\"><p class=\"stk-block-text__text\">Artikel om, hvordan anbefalinger om at klare sig flere d\u00f8gn uden vand\/str\u00f8m kan ramme mennesker med usynlig sygdom anderledes.<\/p><\/div>\n\n\n\n<div class=\"wp-block-stackable-button-group stk-block-button-group stk-block stk-287e7b5\" data-block-id=\"287e7b5\"><div class=\"stk-row stk-inner-blocks stk-block-content stk-button-group\">\n<div class=\"wp-block-stackable-button stk-block-button stk-block stk-0ae8fbb\" data-block-id=\"0ae8fbb\"><style>.stk-0ae8fbb .stk-button{border-top-left-radius:var(--stk--preset--border-radius--full, 9999px) !important;border-top-right-radius:var(--stk--preset--border-radius--full, 9999px) !important;border-bottom-right-radius:var(--stk--preset--border-radius--full, 9999px) !important;border-bottom-left-radius:var(--stk--preset--border-radius--full, 9999px) !important;}.stk-0ae8fbb .stk-button:before{border-style:solid !important;border-top-width:2px !important;border-right-width:2px !important;border-bottom-width:2px !important;border-left-width:2px !important;}<\/style><a class=\"stk-link stk-button stk--hover-effect-darken\" href=\"https:\/\/www.dr.dk\/nyheder\/indland\/vera-frygter-tre-doegn-uden-vand-en-skovskidertur-er-svaerere-mig-end-raske\"><span class=\"stk-button__inner-text\">L\u00e6s artiklen her<\/span><\/a><\/div>\n<\/div><\/div>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>Femina \u2013 &#8220;\u2026 Vera valgte ikke at have et filter&#8221;<\/strong><\/h3>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-78d64b3\" data-block-id=\"78d64b3\"><p class=\"stk-block-text__text\">Artikel om at tale h\u00f8jt om det, mange helst tier om \u2013 og hvorfor \u00e6rlighed kan skabe genkendelse.<\/p><\/div>\n\n\n\n<div class=\"wp-block-stackable-button-group stk-block-button-group stk-block stk-a033462\" data-block-id=\"a033462\"><div class=\"stk-row stk-inner-blocks stk-block-content stk-button-group\">\n<div class=\"wp-block-stackable-button stk-block-button stk-block stk-87bce81\" data-block-id=\"87bce81\"><style>.stk-87bce81 .stk-button{border-top-left-radius:var(--stk--preset--border-radius--full, 9999px) !important;border-top-right-radius:var(--stk--preset--border-radius--full, 9999px) !important;border-bottom-right-radius:var(--stk--preset--border-radius--full, 9999px) !important;border-bottom-left-radius:var(--stk--preset--border-radius--full, 9999px) !important;}.stk-87bce81 .stk-button:before{border-style:solid !important;border-top-width:2px !important;border-right-width:2px !important;border-bottom-width:2px !important;border-left-width:2px !important;}<\/style><a class=\"stk-link stk-button stk--hover-effect-darken\" href=\"https:\/\/www.femina.dk\/liv\/selvudvikling\/det-er-ikke-noget-man-taler-om-men-vera-valgte-ikke-have-et-filter\"><span class=\"stk-button__inner-text\">L\u00e6s artiklen her<\/span><\/a><\/div>\n<\/div><\/div>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>JV.dk \u2013 kampen for at blive taget seri\u00f8st<\/strong><\/h3>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-e3ca94b\" data-block-id=\"e3ca94b\"><p class=\"stk-block-text__text\">Artikel om en lang kamp med usynlige smerter, at blive m\u00f8dt med tvivl \u2013 og konsekvenserne af et alvorligt sygdomsforl\u00f8b.<\/p><\/div>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-8b6faea\" data-block-id=\"8b6faea\"><p class=\"stk-block-text__text\">Knap\/link: L\u00e6s artiklen p\u00e5 JV.dk<\/p><\/div>\n\n\n\n<div class=\"wp-block-stackable-button-group stk-block-button-group stk-block stk-e2be101\" data-block-id=\"e2be101\"><div class=\"stk-row stk-inner-blocks stk-block-content stk-button-group\">\n<div class=\"wp-block-stackable-button stk-block-button stk-block stk-fdeb515\" data-block-id=\"fdeb515\"><style>.stk-fdeb515 .stk-button{border-top-left-radius:var(--stk--preset--border-radius--full, 9999px) !important;border-top-right-radius:var(--stk--preset--border-radius--full, 9999px) !important;border-bottom-right-radius:var(--stk--preset--border-radius--full, 9999px) !important;border-bottom-left-radius:var(--stk--preset--border-radius--full, 9999px) !important;}.stk-fdeb515 .stk-button:before{border-style:solid !important;border-top-width:2px !important;border-right-width:2px !important;border-bottom-width:2px !important;border-left-width:2px !important;}<\/style><a class=\"stk-link stk-button stk--hover-effect-darken\" href=\"\"><span class=\"stk-button__inner-text\">L\u00e6s artiklen her<\/span><\/a><\/div>\n<\/div><\/div>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 class=\"wp-block-heading\">Podcast &amp; lyd<\/h2>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>Podcast \u2013 samtale om tarmsygdom og m\u00f8det med sundhedsv\u00e6senet<\/strong><\/h3>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-8f5bd13\" data-block-id=\"8f5bd13\"><p class=\"stk-block-text__text\">En samtale med fokus p\u00e5 dialog, forst\u00e5else og livet bag diagnose<\/p><\/div>\n\n\n\n<div class=\"wp-block-stackable-button-group stk-block-button-group stk-block stk-6629b57\" data-block-id=\"6629b57\"><div class=\"stk-row stk-inner-blocks stk-block-content stk-button-group\">\n<div class=\"wp-block-stackable-icon-button stk-block-icon-button stk-block stk-92fb48b\" data-block-id=\"92fb48b\"><a class=\"stk-link stk-button stk--hover-effect-darken\" href=\"https:\/\/open.spotify.com\/episode\/3aJgDWjligP7GJvSco3IrY?si=kM5YATnjSnm9yA_uUd0w6Q\"><span class=\"stk--svg-wrapper\"><div class=\"stk--inner-svg\"><svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" viewBox=\"0 0 384 512\" aria-hidden=\"true\" width=\"32\" height=\"32\"><path d=\"M192 0C139 0 96 43 96 96V256c0 53 43 96 96 96s96-43 96-96V96c0-53-43-96-96-96zM64 216c0-13.3-10.7-24-24-24s-24 10.7-24 24v40c0 89.1 66.2 162.7 152 174.4V464H120c-13.3 0-24 10.7-24 24s10.7 24 24 24h72 72c13.3 0 24-10.7 24-24s-10.7-24-24-24H216V430.4c85.8-11.7 152-85.3 152-174.4V216c0-13.3-10.7-24-24-24s-24 10.7-24 24v40c0 70.7-57.3 128-128 128s-128-57.3-128-128V216z\"\/><\/svg><\/div><\/span><\/a><\/div>\n<\/div><\/div>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 class=\"wp-block-heading\">Opl\u00e6g, undervisning &amp; faglig formidling<\/h2>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-364a787\" data-block-id=\"364a787\"><p class=\"stk-block-text__text\">Takeda-sponsoreret internationalt webinar (2020)<\/p><\/div>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-8daf3d1\" data-block-id=\"8daf3d1\"><p class=\"stk-block-text__text\">Medvirkende som opl\u00e6gsholder i webinaret<br>\u201cLife with Perianal Fistulas: A Patient and Caregiver Perspective\u201d.<\/p><\/div>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Afholdt: 30. september 2020<\/li>\n\n\n\n<li>M\u00e5lgruppe: sundhedsprofessionelle og offentligheden<\/li>\n\n\n\n<li>Del af en bredere patientcentreret uddannelsesindsats<\/li>\n<\/ul>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-ed67988\" data-block-id=\"ed67988\"><p class=\"stk-block-text__text\">Webinaret satte fokus p\u00e5 den menneskelige side af komplekse perianale fistler og belyste den f\u00f8lelsesm\u00e6ssige og fysiske belastning ved at leve med det, der ofte beskrives som \u201cen sygdom i sygdommen\u201d.<\/p><\/div>\n\n\n\n<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\">\n<p class=\"wp-block-paragraph\">\u201cDet er ikke en klinisk diagnose, der fylder mest \u2013 men konsekvenserne i hverdagen.\u201d<\/p>\n<\/blockquote>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>Coloplast \u2013 efteruddannelse af stomisygeplejersker<\/strong><\/h3>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-396a3a1\" data-block-id=\"396a3a1\"><p class=\"stk-block-text__text\">Opl\u00e6g p\u00e5 Coloplasts \u00e5rlige efteruddannelse for stomisygeplejersker med fokus p\u00e5 hverdagsliv, fistler, s\u00e5rbarhed og patientperspektiv.<\/p><\/div>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-9900f7c\" data-block-id=\"9900f7c\"><p class=\"stk-block-text__text\">Emner jeg ofte bliver inviteret til at tale om:<\/p><\/div>\n\n\n\n<ul class=\"wp-block-list\">\n<li>At leve med fistler \u2013 konsekvenserne mellem konsultationerne<\/li>\n\n\n\n<li>Hverdagsliv, smerter, tr\u00e6thed og energi\u00f8konomi<\/li>\n\n\n\n<li>Stigma, skam og det usynlige ved kronisk sygdom<\/li>\n\n\n\n<li>Patientperspektivet i m\u00f8det med sundhedsv\u00e6senet<\/li>\n\n\n\n<li>N\u00e5r erfaring kan bidrage til bedre praksis<\/li>\n<\/ul>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 class=\"wp-block-heading\">Organisationer &amp; samarbejder<\/h2>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong><a href=\"https:\/\/tarmsygdomme.dk\/2023\/01\/17\/vera-slyk-pedersen-ccf-ambassadoer\/\">Foreningen for tarmsyge CCF<\/a>:<\/strong> Patientambassad\u00f8r og medvirkende i formidling, medier og faglige sammenh\u00e6nge.<\/li>\n\n\n\n<li><strong><a href=\"https:\/\/www.coloplast.dk\/Global\/Denmark\/Stomi\/Stomi%20og%20sund%20hud_Final.pdf\">Coloplast<\/a>:<\/strong> Medvirken med tekst og billeder i informationsmateriale om hud og stomi samt opl\u00e6g og undervisning.<\/li>\n\n\n\n<li><strong>Bogen <em>Patientens stemme<\/em> af <\/strong><em><strong>Christin Walter:<\/strong> <\/em>Med citat.<\/li>\n<\/ul>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>Patientpriser &amp; anerkendelse<\/strong><\/h3>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-64cfbc4\" data-block-id=\"64cfbc4\"><p class=\"stk-block-text__text\">Jeg har p\u00e5 vegne af CCF Foreningen v\u00e6ret med til at uddele patientpriser til fagpersoner, der har gjort en s\u00e6rlig forskel for patienter:<\/p><\/div>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>Overl\u00e6ge og professor Torben Knudsen<\/strong> \u2013 for hans indsats og betydning for patienter.<\/li>\n\n\n\n<li><strong>Overl\u00e6ge<\/strong> <strong>Karam Faiq S\u00f8rensen<\/strong>, \u2013 for hans arbejde og engagement set fra et tydeligt patientperspektiv.<\/li>\n<\/ul>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<div class=\"wp-block-stackable-button-group stk-block-button-group stk-block stk-ee3077c\" data-block-id=\"ee3077c\"><div class=\"stk-row stk-inner-blocks stk-block-content stk-button-group\">\n<div class=\"wp-block-stackable-button stk-block-button stk-block stk-7c1e80f\" data-block-id=\"7c1e80f\"><a class=\"stk-link stk-button stk--hover-effect-darken\" href=\"https:\/\/www.linkedin.com\/posts\/sydvestjysk-sygehus_prisvinder-svs-colitischron-activity-6747427504983732224-zQlP?utm_source=social_share_send&amp;utm_medium=member_desktop_web&amp;rcm=ACoAABlEI9cBt6FRnc0CwcI7gpDC0BidgQGcMOM\"><span class=\"stk-button__inner-text\">L\u00e6s om overr\u00e6kkelsen til Torben Knudsen her<\/span><\/a><\/div>\n\n\n\n<div class=\"wp-block-stackable-button stk-block-button stk-block stk-eb5d80e\" data-block-id=\"eb5d80e\"><a class=\"stk-link stk-button stk--hover-effect-darken\" href=\"https:\/\/www.facebook.com\/share\/1EwnHo7bNq\/\"><span class=\"stk-button__inner-text\">L\u00e6s om overr\u00e6kkelsen til Karam Faiq S\u00f8rensen her<\/span><\/a><\/div>\n<\/div><\/div>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-b7a70fd\" data-block-id=\"b7a70fd\"><p class=\"stk-block-text__text\"><\/p><\/div>\n\n\n\n<div class=\"wp-block-stackable-text stk-block-text stk-block stk-e889c5f\" data-block-id=\"e889c5f\"><p class=\"stk-block-text__text\"><\/p><\/div>\n","protected":false},"excerpt":{"rendered":"<p>Min stemme i verden Forskning &amp; faglige bidrag The Lancet \u2013 international medicinsk artikel Medforfatter p\u00e5 artikel i The Lancet med fokus p\u00e5 patientperspektiver og kliniske analyser, som bringer fokus p\u00e5 b\u00e5de sygdomsbyrde og det liv, der leves uden for laboratoriet. L\u00e6s artiklen her ECCO \u2013 guidelines og konsensus om kost &amp; ern\u00e6ring Kort om, [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-1510","page","type-page","status-publish","hentry"],"blocksy_meta":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.7 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>&quot;Min stemme i verden&quot; - Velkommen til Ulla<\/title>\n<meta name=\"description\" content=\"Min stemme i verden er min side med mine personlige bedrifter og for at prale men for at sige at jeg faktisk mener det jeg siger\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/velkommentilulla.dk\/?page_id=1510\" \/>\n<meta property=\"og:locale\" content=\"da_DK\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"&quot;Min stemme i verden&quot; - 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